1999-2021: Early Efforts
1999
1st Curing Epilepsy:
Focus on the Future
White House + NINDS and Advocates
Turning point from treating
seizures to identifying cures
2007
Institute of Medicine (IOM) focused
on public health and epilepsy
2013
NINDS & AES invite Epilepsy Leadership Council Advocates to liaison with Benchmark Stewards (Laura Lubbers & Ilene Miller Co-Chairs)
2018-21
4th Curing Epilepsy:
Setting Research Priorities conference
​
Advocates publish an article titled Epilepsy Community at An Inflection Point
Professionals article also published
​
ELC Advocates Work Group is disbanded
​
Advocate leaders from EF, CURE, REN, & DEE-P continue discussions
Epilepsy: A Report to the Nation
Epilepsy Foundation
2000
2nd Curing Epilepsy:
Translating Discoveries into Therapies
(added comorbidities and SUDEP)
2010-12
3rd Curing Epilepsy:
Pathways Forward conference
2017
ELC Advocates Work Group formed
Many meetings to coordinate Advocates inputs to strategy, conference, agenda, crowdsourcing, campaign, etc.