Gabrielle Conecker, MPH

Gabi is mom to Elliott, now 10 years old, who struggles with a severe rare epilepsy, SCN8A. Gabi co-founded Decoding Developmental Epilepsies (DDE) to fight for better care and treatments for those with rare, devastating epilepsies or developmental and epileptic encephalopathies (DEEs). The projects of DDE are far-reaching and span from disease-specific advocacy and organizing (International SCN8A Alliance) to a rare epilepsy collaborative project to provide education and resources to empower families who have children with severe forms of epilepsy (DEE-P Connections) and research efforts that are working to improve the understanding of DEEs and the way we care for and treat these disorders (The Inchstone Project). She has a track record of working across disorders and organizations and is passionate about advocating for improved translation of research to outcomes for those living with epilepsy.