Ilene Penn Miller, J.D., LLM
Rare Epilepsy Network (REN)
Ilene Penn Miller is an epilepsy caregiver and thought leader in the epilepsies with 20+ years’ of experience in nonprofit strategic planning, program execution, and operations. She helped found and direct activities of the Epilepsies Action Network. She serves as the Director for the Rare Epilepsy Network (REN) – 100+ rare epilepsy organizations committed to improving outcomes for patients through collaborative research. She is the co-lead of a Rare Epilepsy ECHO to transfer learnings from experts to clinicians nationwide. Recent publications by Ilene and colleagues include The Epilepsy Community at an Inflection Point: Translating Research Toward Curing the Epilepsies and Improving Patient Outcomes (Epilepsy Currents, June 2021); Rare Epilepsy Landscape Analysis & Appendix (RELA), and an editorial Raring For Change (Epilepsy & Behavior, 2020). Ilene has a JD from Columbus School of Law and an LLM & Nonprofit Management Certificate from Georgetown University.