Visit the bipartisan Epilepsy Caucus to see if your US House of Representatives or Senators have joined. And if not, please encourage them to do. Hearing from constituents is the #1 motivator. Here's how!
On February 11, 2025, bipartisan Epilepsy Caucus Co-Chairs Senators Eric Schmitt (R-MO) and Amy Klobuchar (D-MN) and U.S. Reps. Greg Murphy, MD (R-NC-3) and Jim Costa (D-CA-21) introduced (HR 1189/ S 494) to create a National Plan for Epilepsy.
Now we need ALL epilepsy stakeholders to ask their legislators to sign on. Visit https://www.epilepsiescaucus.org/supportplan for an easy look up tool. Or if you prefer to do this the old fashion way, easy to follow steps and suggested langauge follow.
STEP ONE: Visit epilepsycaucus.org to see if your legislators have signed onto the bill.
STEP TWO: If they are not, send a PERSONAL message like the one below to encourage them to join. You can look your legislators up using these links. You can even send them a message on their contact me webforms also found in the look ups below.
Text you can use to communicate with your Member of Congress:
Dear Senator/Representative [Name].
“As someone [LIVING WITH/AFFECTED BY] the epilepsies, I ask [Representative or Senator [LAST NAME] to join the bipartisan congressional Epilepsy Caucus.
At least 3.4 million Americans live with active epilepsy, including 470,000 children and [ADD NUMBER IN YOUR STATE, as found here https://www.cdc.gov/epilepsy/data/index.html] people in [STATE].
Epilepsy is a disease or disorder of the brain which causes reoccurring seizures. It is a spectrum disease comprised of many diagnoses including an ever-growing number of rare epilepsies. Epilepsy, seizures, and their severity are different person-to-person, but epilepsy often impacts many aspects of life including needed health care, employment, education and transportation. Epilepsy and/or seizures impose an annual economic healthcare burden of at least $54 Billion.
[SHARE HOW EPILEPSY HAS IMPACTED YOUR LIFE AND WHY YOU’D LIKE YOUR REP TO SIGN ON TO THE NATIONAL PLAN LEGISLATION.]
Thank you for considering this request. Please sign on to the National Plan legislation (S 494 / HR 1189) TODAY.
It would mean so much to my family.
Need help - contact info@epilepsiesactionnetwork.org
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