Join in person to learn about the epilepsies and funding priorities that will improve access to care, health outcomes and awareness.
November 14th @ 8:30 am - 11 am
RSVP at https://bit.ly/NEAMCB23
On Nov. 14, Epilepsies Action Network (EAN) again joins the bipartisan Epilepsy Caucus, Epilepsy Foundation, CUREEpilepsy, DEE-P and Rare Epilepsy Network (REN) in organizing a Congressional briefing to increase awareness of the epilepsies.
Location: In-person event at 2045 Rayburn House Office Building, 45 Independence Ave SW, Washington, DC 20515
Special Remarks by:
Rep. Steny Hoyer (MD-5) - longtime Congressional leader and epilepsy champion
Epilepsy Congressional Caucus Co-Chairs: Congressmen Greg Murphy, MD (NC-3) and Jim Costa (CA-21)
Dr. Walter Koroshetz, MD, Director, NINDS
Moderator & Speakers:
Bee Martin Lee, President and Chief Executive Officer, Epilepsy Foundation
Dave Clarke, MD, Chief of the Comprehensive Pediatric Epilepsy Program, UT Health Austin Pediatric Neurosciences & Professor, UT Austin Dell Medical School
Scott & Jillian Copeland, Parents of a Son with Epilepsy & Co-Founders, Epilepsies Action Network
Gardiner Lapham, MPH, RN, Parent who lost a child to Sudden Unexpected Death in Epilepsy & Co-Founder, Chair of Partners Against Mortality in Epilepsy (PAME)
Format:
8:30 AM – Coffee & Refreshments
9:00 AM – Opening remarks, followed by presentations from a clinician, caregivers, and advocates.
10:00 AM – Q&A
Key Facts:
1 in 26 people will develop a form of epilepsy
3.4 million Americans live with active epilepsy, including 470,000 children and teens
There are many different types of seizures and varying levels of seizure control
1 in 1,000 people die from Sudden Unexpected Death in Epilepsy (SUDEP)