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National Epilepsy Awareness Month Congressional Briefing on Nov. 14th

Updated: Nov 21, 2023

Join in person to learn about the epilepsies and funding priorities that will improve access to care, health outcomes and awareness.


November 14th @ 8:30 am - 11 am

On Nov. 14, Epilepsies Action Network (EAN) again joins the bipartisan Epilepsy Caucus, Epilepsy Foundation, CUREEpilepsy, DEE-P and Rare Epilepsy Network (REN) in organizing a Congressional briefing to increase awareness of the epilepsies.

Location: In-person event at 2045 Rayburn House Office Building, 45 Independence Ave SW, Washington, DC 20515


Special Remarks by:

  • Rep. Steny Hoyer (MD-5) - longtime Congressional leader and epilepsy champion

  • Epilepsy Congressional Caucus Co-Chairs: Congressmen Greg Murphy, MD (NC-3) and Jim Costa (CA-21)

  • Dr. Walter Koroshetz, MD, Director, NINDS

Moderator & Speakers:

  • Bee Martin Lee, President and Chief Executive Officer, Epilepsy Foundation

  • Dave Clarke, MD, Chief of the Comprehensive Pediatric Epilepsy Program, UT Health Austin Pediatric Neurosciences & Professor, UT Austin Dell Medical School

  • Scott & Jillian Copeland, Parents of a Son with Epilepsy & Co-Founders, Epilepsies Action Network

  • Gardiner Lapham, MPH, RN, Parent who lost a child to Sudden Unexpected Death in Epilepsy & Co-Founder, Chair of Partners Against Mortality in Epilepsy (PAME)

Format:

  • 8:30 AM – Coffee & Refreshments

  • 9:00 AM – Opening remarks, followed by presentations from a clinician, caregivers, and advocates.

  • 10:00 AM – Q&A

Key Facts:

  • 1 in 26 people will develop a form of epilepsy

  • 3.4 million Americans live with active epilepsy, including 470,000 children and teens

  • There are many different types of seizures and varying levels of seizure control

  • 1 in 1,000 people die from Sudden Unexpected Death in Epilepsy (SUDEP)



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