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  • Epilepsies Action Network

Advocating ARPA-H Prioritize The Epilepsies

Epilepsies Action Network wrote to Dr. Renee Wegrzyn, new Director of Advanced Research Projects Agency for Health (ARPA-H) to request that as programs and new hires are made the epilepsies be prioritized. Click to see a copy of the letter.

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The Omnibus included $1.5B for ARPHA-H with a mission to advance biomedical research and development and create breakthrough health technologies. The agreement:

  • encourages HHS to collaborate with the Defense Advanced Research Projects Agency (DARPA) to develop the foundational policies, procedures, and staff training for ARPA-H employees.

  • believes ARPA-H will require a very different culture and mission than NIH's other 27 Institutes and Centers

  • recommends the development of an entrepreneurial culture and expects ARP A-H to be physically located away from the main NIH campus

  • acknowledges the NIH workforce is composed of dedicated, talented, and frequently brilliant scientists, but discourages recruitment from the existing NIH workforce for ARPA-H and instead recommends that ARPA-H recruit from industry, academia, and think tanks, as well as from proven advanced research project organizations.

  • directs ARPA-H to provide quarterly briefings to the Committees on its establishment process, hiring, and scientific priorities and progress and

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