Visit the bipartisan Epilepsy Caucus to see if your US House of Representatives have joined. And if not, you can encourage your U.S. Representative and any other Representatives you have connections with to join. Here's how!
Bipartisan Co-Chairs U.S. Reps. Greg Murphy, MD (R-NC-3) and Jim Costa (D-CA-21) launched the first-ever Congressional Epilepsy Caucus in February 2023. Congressional caucuses bring members of Congress together around a shared interest to consider policy solutions—so this caucus is a great way to raise awareness, build epilepsy champions and advance epilepsy-related federal policies and funding. As of now, there is only an Epilepsy Caucus in the U.S. House of Representatives. In time, we hope to establish a complimentary Epilepsy Caucus in the U.S. Senate.
We hope all Members will join this Caucus! Urge your Member to join in just a few easy steps:
Contact your US Representatives Office. You can (1) send it via the "contact me" webform on their official congressional website or (2) call the phone number listed on their official congressional website or call the U.S. Capitol switchboard at 202-224-3121 (voice) or 202-224-3091 (TTY) to be connected. Typically, you want to ask to be connected with the staff person who handles healthcare. If you don’t know your U.S. Representative, you can look them up here.
Use the draft message below. Be sure to personalize the wording highlighted in yellow.
Urge your Representative to contact the health staff for either Rep. Murphy (McLean.Piner@mail.house.gov) or Rep. Costa (Kit.Devine@mail.house.gov).
Text you can use to communicate with your Member of Congress:
“As someone [LIVING WITH/AFFECTED BY] the epilepsies, I ask Rep. [LAST NAME] to join the recently established bipartisan congressional Epilepsy Caucus. At least 3.4 million Americans live with active epilepsy, including 470,000 children and [ADD NUMBER IN YOUR STATE, as found herehttps://www.cdc.gov/epilepsy/data/index.html] people in [STATE]. Epilepsy is a disease or disorder of the brain which causes reoccurring seizures. It is a spectrum disease comprised of many diagnoses including an ever-growing number of rare epilepsies. Epilepsy, seizures, and their severity are different person-to-person, but epilepsy often impacts many aspects of life including needed health care, employment, education and transportation. Epilepsy and/or seizures impose an annual economic healthcare burden of at least $54 Billion.
[SHARE HOW EPILEPSY HAS IMPACTED YOUR LIFE AND WHY YOU’D LIKE YOUR REP TO JOIN THE CAUCUS.]
Thank you for considering this request. To join, contact the health staff for either Rep. Murphy (McLean.Piner@mail.house.gov) or Rep. Costa (Kit.Devine@mail.house.gov).”