Watch A VIRTUAL Congressional Briefing Live on July 16th
- Ilene Miller
- Jul 1
- 2 min read
Watch a LIVE Congressional Briefing without leaving your home!
Learn how the National Plan for Epilepsy Act, introduced by Sens. Schmitt and Klobuchar, and Reps. Murphy and Costa will save lives and honor actor Cameron Boyce, and the many others who have died from epilepsy.
People with epilepsy have a three times higher risk of death than the general population due to preventable causes including Sudden Unexpected Death in Epilepsy (SUDEP), so it’s critical to address this issue systemically. Our expert panel includes:
Libby Boyce, Founder, The Cameron Boyce Foundation
Dr. Dan Atherton, MD, Associate Professor, The University of Alabama at Birmingham
Gardiner Lapham, MPH, RN, Co-Chair, Partners Against Mortality in Epilepsy (PAME)
Tom Stanton, President, The Danny Did Foundation
Register HERE (Link: https://us06web.zoom.us/webinar/register/WN_UOZCxB-JTJqic-E0_HV0FA#/registration) We hope you can attend!
Three NEW Legislators Signed On to the National Plan for Epilepsy!
WHY? Because organizations and individuals just like YOU asked, and asked again and again.
Delighted to have Reps. Steve Cohen (D-TN-9), Rep. Henry Cuellar (D-TX-28) and long time epilepsy champion Rep. Steny Hoyer (D-MD-5) as part of the signors! We still have a ways to go! Read below for how to help!
Everything YOU Need to Get YOUR Legislators to Sign On!
The ask is simple: Ask YOUR Legislators (House & Senate) to Sign On to the National Plan for Epilepsy NOW. After you submit your ask (via email, letter, call, in person or or via zoom meeting) - post to your social media and ask your friends, family, neighbors, and colleagues to do the same. NUMBERS, VOLUME, QUANTITY MATTER!
You can track sign ons here for SENATE S 494 (5) and HOUSE HR 1189 (16) We need 100's.
Visit our one stop voter voice email system (look up your legislators; personalize your message, send directly) or follow our template for creating your own message.
Caught In the ACT!
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