Our Mission
Advancing strategic national policies, innovative research programs,
and funding to improve the lives and outcomes of
ALL those living and struggling with The Epilepsies.
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1 in 26 people will develop a form of epilepsy in their lifetime.[1]
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3.4 million Americans currently live with active epilepsy, including 470,000 children and teenagers.[2]
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The Epilepsies impact infants, children, young adults, seniors, wounded warfighters and veterans, and persons with traumatic brain injury.
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The epilepsies can be deadly, with one out of every 1,000 people dying from Sudden Unexpected Death in Epilepsy (SUDEP).[1]This is 2x higher for the non-Hispanic Black population.
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Delayed recognition of seizures may lead to a long diagnostic odyssey.
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Inadequate or delayed treatment increase a person’s risk of subsequent seizures, brain damage, disability, and death.
The Epilepsies



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The total healthcare burden for people living with the epilepsies or seizures is at least $54 billion.
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Yet only half of a percent of the more than $42 billion the National Institute of Health (NIH) spends on medical research each year, goes to epilepsy.[2]
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32% of adults with epilepsy can't work and 53% with uncontrolled seizures live in households earning < $25,000/yr.[3]
