Call to Increase Epilepsies Awareness & Resources NOW - NEAM2023 Congressional Briefing
On Nov 14, the bipartisan Epilepsy Congressional Caucus organized a briefing in cooperation with Epilepsies Action Network (EAN) and our...
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ilenepennmiller
- Nov 7
- 1 min
National Epilepsy Awareness Month Congressional Briefing on Nov. 14th
Join in person to learn about the epilepsies and funding priorities that will improve access to care, health outcomes and awareness....
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Epilepsies Action Network
- Sep 7
- 2 min
A Summer Spent Listening
We are excited to report on some summer successes! We appreciate legislative advocacy can be confusing with many moving parts. We will do...
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Epilepsies Action Network
- Aug 30
- 2 min
Senate LHHS Report Includes The Epilepsies
Following the release of the FY24 Senate LHHS Appropriations bill at the end of July, the Epilepsies Action Network is pleased to share...
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Epilepsies Action Network
- Jul 12
- 4 min
Share YOUR Inputs for Federal Funding for the Epilepsies
The Epilepsies Action Network (EAN) would like your input as we plan legislative action for 2024. Please share your top three policy...
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Epilepsies Action Network
- Jul 6
- 2 min
Is YOUR Members of Congress on the Epilepsy Caucus?
Visit the bipartisan Epilepsy Caucus to see if your US House of Representatives have joined. And if not, you can encourage your U.S....
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Epilepsies Action Network
- Jun 15
- 1 min
Swing Into Summer
Epilepsies Action Network (EAN) Read our Swing Into Summer update here for a summary of progress and activities underway and upcoming....
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Epilepsies Action Network
- May 17
- 2 min
36 Organizations Urge Increased Federal Funding for the Epilepsies
Over 36 epilepsy organizations joined forces signing a letter to the House and Senate Appropriations Committees urging them to provide...
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Epilepsies Action Network
- May 16
- 1 min
Congressional Briefing on the Epilepsies - A Huge Success!
On May 17, Epilepsies Action Network (EAN) was pleased to participate in a Congressional Briefing on the Epilepsies in cooperation with...
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Epilepsies Action Network
- Mar 28
- 1 min
Spring Into Action
Epilepsies Action Network (EAN) has sprung into action! You are receiving this enewsletter update because you have joined past EAN...
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Epilepsies Action Network
- Dec 21, 2022
- 2 min
What Does the Omnibus Mean for The Epilepsies?
Epilepsies Action Network advisors are still reading their way through this 4,000 page document. But a few key highlights follow: HHS...
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Epilepsies Action Network
- Dec 21, 2022
- 2 min
Epilepsies Action Network | Thank You & Year End Update
As 2022 draws to a close, we want to thank you for your partnership and collaboration. As you know, the goal of the Epilepsies Action...
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Epilepsies Action Network
- Dec 20, 2022
- 1 min
Undiagnosed Disease Network Funded at $18M for FY23
Epilepsies Action Network alongside other thought leaders for The Epilepsies advocated to the Senate and House Appropriations Committees...
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Epilepsies Action Network
- Dec 15, 2022
- 1 min
Advocating ARPA-H Prioritize The Epilepsies
Epilepsies Action Network wrote to Dr. Renee Wegrzyn, new Director of Advanced Research Projects Agency for Health (ARPA-H) to request...
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Epilepsies Action Network
- Nov 28, 2022
- 8 min
200+ Epilepsies Action Network Stakeholders Write to President Biden to Increase Epilepsy Funding
200+ families, clinicians, researchers and advocates send a letter to President Biden to increase federal investment in The Epilepsies.
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