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A MUST Listen, A Toolkit, Shout Outs & More

  • Writer: Ilene Miller
    Ilene Miller
  • Jun 5
  • 2 min read

Thank you to CURE Epilepsy & the Seizing Life Podcast with Host Kelly Cervantes for your interview of Dr. Dan Lowenstein on a National Plan for Epilepsy. This is a must listen for anyone who wants to understand why Dr. Lowenstein says this is the most exciting thing to happen by and for epilepsy in more than 50 years! Even in these uncertain times, we must all work together to bring this important legislation to fruition for our families.

Everything YOU Need to Get YOUR Legislators to Sign On!


The ask is simple:  Ask YOUR Legislators (House & Senate) to Sign On to the National Plan for Epilepsy NOW. After you submit your ask (via email, letter, call, or in person or zoom meeting) - post to your social media and ask your friends, family, neighbors, and colleagues to do the same. Numbers matter.

You can track sign ons here for  SENATE S 494 (5) and HOUSE HR 1189 .  We have 11 in the House and 5 in the senate. We need 100's.
Visit our one stop voter voice email system (look up your legislators; personalize your message, send directly) or follow our template for creating your own message. In case you missed it, our 5/13 stakeholder Update slides and recording are here  Passcode: xQ!w$BJ4

HELP Save Current Programs & Funding

If you missed the Federal Cuts & Changes Advocacy Toolkit & Training on May 29th, you can listen here and download slides and toolkit too.

Remember these priorities are not mutually exclusive; they reinforce one another. We must ALL use our voices to share why protecting research and public health matters AND ask legislators to support a Plan to advance the Epilepsies.

 

Caught In the ACT!

Thank you Epilepsy Alliance America for setting a great example of advocacy in action. Your community is a valued partner.

We hope your outreach in your Advocacy Action Alerts will inspire others!

Thanks also to Dr. Howard Goodkin, AES President and Laura Lubbers, CURE Epilepsy, for advocating for The National Plan for Epilepsy during the recent Epilepsy Therapies & Diagnostics Development XVIII Conference.


Need additional help?

Sign up to join mtgs in your district/state; we will reach out as needed

Reach out to Katie Collins (kcollins@g2gconsulting.com) and Ilene Miller (ilenepennmiller@gmail.com)



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