Visit the bipartisan Epilepsy Caucus to see if your US House of Representatives or Senators have joined. And if not, please encourage them to do. Hearing from constituents is the #1 motivator. Here's how!
Bipartisan Co-Chairs U.S. Reps. Greg Murphy, MD (R-NC-3) and Jim Costa (D-CA-21) launched the first-ever House of Representatives Epilepsy Caucus in February 2023. Senators Eric Schmitt (MO) and Amy Klobuchar (MN) followed suit in February 2024.
Congressional caucuses bring members of Congress together around a shared interest to consider policy solutions—so these caucuses are a great way to raise awareness, build epilepsy champions and advance epilepsy-related federal policies and funding.
We need ALL epilepsy stakeholders to ask their legislators to join. It's easy!
STEP ONE: Visit epilepsycaucus.org to see if your legislators are on the Caucuses.
STEP TWO: If they are not, send a PERSONAL message like the one below to encourage them to join. You can look your legislators up using these links. You can even send them a message on their contact me webforms also found in the look ups below.
Senate Look Up: bit.ly/SenatorLookUp House of Reps Look Up: bit.ly/Replookup
Text you can use to communicate with your Member of Congress:
“As someone [LIVING WITH/AFFECTED BY] the epilepsies, I ask [Representative or Senator [LAST NAME] to join the bipartisan congressional Epilepsy Caucus.
At least 3.4 million Americans live with active epilepsy, including 470,000 children and [ADD NUMBER IN YOUR STATE, as found here https://www.cdc.gov/epilepsy/data/index.html] people in [STATE].
Epilepsy is a disease or disorder of the brain which causes reoccurring seizures. It is a spectrum disease comprised of many diagnoses including an ever-growing number of rare epilepsies. Epilepsy, seizures, and their severity are different person-to-person, but epilepsy often impacts many aspects of life including needed health care, employment, education and transportation. Epilepsy and/or seizures impose an annual economic healthcare burden of at least $54 Billion.
[SHARE HOW EPILEPSY HAS IMPACTED YOUR LIFE AND WHY YOU’D LIKE YOUR REP TO JOIN THE CAUCUS.]
Thank you for considering this request. Please join the [House/Senate] Epilepsy Caucus today! It would mean so much to my family.
Need help - contact info@epilepsiesactionnetwork.org