Federal Cuts & Changes Advocacy Toolkit & Training - RSVP May 29th 5 PM ET
- Ilene Miller
- 6 days ago
- 2 min read
BIG Thanks to our friends and partners at Epilepsy Foundation for leading the charge on deveoping an advocacy toolkit and training.
We invite you to join a training this Thursday, May 29th from 5:00-6:00 ET launching the Federal Cuts & Changes Advocacy Toolkit. We are providing this toolkit to help people understand the various federal cuts and changes impacting the epilepsy community, as well as resources for them to engage.
The toolkit includes background on numerous pressing issues ranging from the CDC Epilepsy Program to medical research to Medicaid to the Department of Education—allowing people to choose what matters most to them…or engage on everything!
The toolkit also has numerous action alerts so people can quickly email their congressional offices, social media graphics, call scripts, language to request a meeting, and talking points for meetings with congressional offices. It will be your one stop shop for advocacy that we hope will inspire many to action!
This training is open to anyone in the epilepsy community and you are welcome to share it with your networks. Registration will max out at 300. Everyone must register in advance using the link below. The training will be recorded and we will share the recording for those unable to make the scheduled time.
Date and Time: Thursday, May 29 from 5:00-6:00pm Eastern (4-5pm Central/3-4pm Mountain/2-3pm PT/1-2pm Alaska/11am-Noon Hawaii)
Link to Register: https://us06web.zoom.us/meeting/register/NTVKJ5xxQWiyHSDsrPYrSQ
Are We Still Advocating for a National Plan for Epilepsy?
Epilepsies Action Network (EAN) is working tirelessly behind the scenes alongside many partners to onboard sign ons for the National Plan for Epilepsy. Evertyhing that is happening only strengthens our resolve. Grassroots and "grass tops"meetings are happening regularly to educate legislators about the epilepsies and the need for cross government coordinated planning to accelerate innovations in research, understanding, treatment and care. These actions are not mutally exclusive. We can both use our voices to share why protecting research and public health matters AND ask legislators to support a Plan to advance the Epilepsies.
If you missed the May 13th Stakeholder Update, the recording is here Passcode: xQ!w$BJ4 We also included the slides here which can you peruse, reuse, draw from for social media and other posts.
The ask is simple: Ask YOUR Legislators (House & Senate) to Sign On to the National Plan for Epilepsy before month's end. After you submit your ask (via email, letter, call, mtg) - post to your social media and ask other friends, family, neighbors, and colleagues to do the same.
You can track sign ons here for SENATE S 494 (5) and HOUSE HR 1189 . We have 9 in the House and 5 in the senate.
Do You Need Messages & Materials?
-sign up to join mtgs in your district/state; we will reach out as needed (if you have not already)
-one stop voter voice email system (look up your legislators; personalize your message, send directly)
-messages and materials (find your legislators, craft your message)
-links to state statistics
-links to key epilepsy facts (Scroll down)
Need additional help?
Reach out to Katie Collins (kcollins@g2gconsulting.com) and Ilene Miller (ilenepennmiller@gmail.com)
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