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Senate LHHS Report Includes The Epilepsies
Following the release of the FY24 Senate LHHS Appropriations bill at the end of July, the Epilepsies Action Network is pleased to share...
Jack Copeland
Aug 30, 20232 min read
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Share YOUR Inputs for Federal Funding for the Epilepsies
The Epilepsies Action Network (EAN) would like your input as we plan legislative action for 2024. Please share your top three policy...
Jack Copeland
Jul 12, 20239 min read
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Is YOUR Members of Congress on the Epilepsy Caucus?
Visit the bipartisan Epilepsy Caucus to see if your US House of Representatives have joined. And if not, you can encourage your U.S....
Jack Copeland
Jul 6, 20232 min read
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Swing Into Summer
Epilepsies Action Network (EAN) Read our Swing Into Summer update here for a summary of progress and activities underway and upcoming....
Jack Copeland
Jun 15, 20231 min read
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36 Organizations Urge Increased Federal Funding for the Epilepsies
Over 36 epilepsy organizations joined forces signing a letter to the House and Senate Appropriations Committees urging them to provide...
Jack Copeland
May 17, 20232 min read
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Congressional Briefing on the Epilepsies - A Huge Success!
On May 17, Epilepsies Action Network (EAN) was pleased to participate in a Congressional Briefing on the Epilepsies in cooperation with...
Jack Copeland
May 16, 20232 min read
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Spring Into Action
Epilepsies Action Network (EAN) has sprung into action! You are receiving this enewsletter update because you have joined past EAN...
Jack Copeland
Mar 28, 20231 min read
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What Does the Omnibus Mean for The Epilepsies?
Epilepsies Action Network advisors are still reading their way through this 4,000 page document. But a few key highlights follow: HHS...
Jack Copeland
Dec 21, 20222 min read
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Epilepsies Action Network | Thank You & Year End Update
As 2022 draws to a close, we want to thank you for your partnership and collaboration. As you know, the goal of the Epilepsies Action...
Jack Copeland
Dec 21, 20222 min read
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Undiagnosed Disease Network Funded at $18M for FY23
Epilepsies Action Network alongside other thought leaders for The Epilepsies advocated to the Senate and House Appropriations Committees...
Jack Copeland
Dec 20, 20221 min read
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Advocating ARPA-H Prioritize The Epilepsies
Epilepsies Action Network wrote to Dr. Renee Wegrzyn, new Director of Advanced Research Projects Agency for Health (ARPA-H) to request...
Jack Copeland
Dec 15, 20221 min read
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200+ Epilepsies Action Network Stakeholders Write to President Biden to Increase Epilepsy Funding
200+ families, clinicians, researchers and advocates send a letter to President Biden to increase federal investment in The Epilepsies.
Jack Copeland
Nov 28, 20229 min read
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